Researchers explore reasons for higher prevalence of blindness among women Daithí Ó hAnluain
SCIENTISTS, ophthalmologists and health policy experts debated what could be done to combat the high global prevalence of blindness in women at a conference in Boston sponsored by the newly formed Women's Eye Health Task Force. Attendees learned that longevity alone doe not account for the large disparity in blindness between the sexes. Women have higher rates of blindness and visual impairment in all age groups world wide, and blindness is more common among women in both developed and developing economies. The surprise statistic came to light in 2001 when a major meta-analysis of population-based prevalence surveys was published in Ophthalmic Epidemiology. Using data from than 70 epidemiological studies on blindness conducted over the past 20 years, the study found that the burden of blindness fell 64% on women, a statistic maintained across the world.
While the disparity between sexes is maintained across economies, the reasons for the disparity vary. Longevity does play a role particularly in developed countries , but this is combined with problems of access to services and education faced by women. "In the developed world longevity is truly a factor - but many eye conditions are preventable, treatable or the onset of visual impairment can be delayed," said Ilene Gipson PhD, Senior Scientist at Schepens Eye Research Institute and chair of the Women's Eye Health Task Force (WEHTF). "In the developing countries, it's a different story. Lack of access to medical care is a major factor, as is infectious disease, such as trachoma. Prevention and treatment are not occurring and that's the rationale for the formation of the WEHTF. We would like to make this known globally if we can."
Not only are many of the causes of blindness treatable, they are linked to the world's biggest causes of premature death. Julie E. Buring MD, professor of ambulatory care and prevention at Harvard Medical School told the conference that age-related chronic diseases, such as heart disease and cancer, and age-related causes of blindness such as cataract and AMD, share a number of modifiable risk factors: smoking, diabetes, physical inactivity, obesity, hypertension, hormones, and nutrition. Dr. Buring called for innovative strategies to raise awareness of the importance and impact of these risk factors, such as education, screening and effective strategies to encourage modification of these risk factors.
Debra A. Schaumberg MD, an assistant professor of Medicine in the Division of Preventive Medicine at Brigham and Women's Hospital and Harvard Medical School , described her studies that indicate a strong relationship between the use of hormone replacement therapy and dry eye syndrome. She added that there are no major sex differences in cases of age-related macular disease, but that sex difference appeared in age-related cataract from 65 years on and that there is an increased risk of cortical cataract in women. Higher rates of low vision also exist among older women. Alerting the public and the eye health care professionals is a goal of the WEHTF. Dr. Gipson told EuroTimes that ophthalmologists and other eye health care professionals do not realise the extent of the problem.
Educating both patients (see sidebar) and his ophthalmologist colleagues is the role embraced by Paul Courtright PhD, a co-author on the epidemiological meta-analysis of blindness and gender. "Our study was only published two years ago and it takes times for the message to sink in. Some ophthalmologists are aware of the problem, some are not. We have set up collaborative work with colleagues in Egypt , India , Nepal and Tibet . They are starting to develop programmes to reach women. But lowering the rate of blindness among women requires increasing access to and acceptance of eye care services. This will take time to achieve," Dr. Courtright, of the Kilimanjaro Centre for Community Ophthalmology in Moshi , Tanzania , told EuroTimes. Ophthalmologists also have an important role in alerting patients to referral services for low vision support.
"Usually an ophthalmologist will say that 'nothing further can be done' and at that time they mean that there is no further surgical or medical treatment that will bring back vision," said Professor Hugh Taylor, managing director of the Centre for Eye Research, Australia, and keynote speaker at the conference. "This is interpreted by the patient that there is nothing of any sort that can be done to help them, where in reality there is a huge amount that could be done to help them use their residual vision by appropriate referral to low vision services." The bottom line is that patients, and particularly women, need to be alerted to potential problems with eye health. They need to be told that many of the causes of premature death can also cause blindness, and when an eye disease or condition becomes untreatable, patients need information to make the most of use of the vision that remains.
"One of the most important ways we can tackle this is by educating mothers to the problem. As the primary care-givers they can teach their children so that in time the problem will be eradicated." said Dr Gipson.
An estimated two-thirds of all cataract blindness occurs in women in developing countries. Despite this fact, corrective surgery is performed consistently more often on men rather than women.
An innovative project in Tanzania is attempting to bridge the gap between women and ophthalmic services.
"In hospitals throughout Tanzania less than half of the cataract patients are women; to reflect the burden of cataract blindness in Tanzania at least 65% of the cataract patients having surgery should be women," Dr. Courtright told EuroTimes.
The barriers preventing people from using eye care services are different for women and men.
"While cost is a concern for both, women do not have decision-making authority in most households to use available resources," said Dr. Courtright. "While distance to the hospital is a concern for both men and women, women have less experience outside of the community and are more likely to need assistance to reach a hospital. Women are also less likely to be aware of services because of lower levels of literacy and limited ability to travel outside the community. The social structure of households in sub-Saharan Africa tends to devalue the role of women; consequently, men do not appreciate the value of cataract surgery for their wives."
To combat these problems, the KCCO developed a program to extend the reach of their services. While all patients were treated, the programme also sought to bring the number of women treated into line with the incidence of disease.
"The program we started one year ago reaches 1.3 million people and employs a gender sensitive approach," Dr. Courtright told EuroTimes.
The KCCO screens villagers at 20 different sites and every village is linked to a site. It has promoted treatment within village communities through community leaders, schoolteachers and the radio and negotiated lower-cost cataract operations. It provides transport for screening and treatment. It has made a particular point of encouraging women to attend the clinics.
"In the past year the number of surgeries has doubled and the numbers of women attending clinics is beginning to increase," said Dr. Courtright. To track changes, KCCO it employs gender-based indicators for reporting, something Dr. Courtright would like to see done in all programs, and particularly with Vision 20/20.
Professor Hugh Taylor outlined the dire social consequences of poor vision, explained the barriers that exist and offered solutions in a keynote speech during the conference.
"Poor vision is bad for you," Professor Hugh Taylor, managing director of the Centre for Eye Research, Australia , told the conference. It significantly reduces the quality and length of life, independent living and healthy ageing.
Its consequences include increased social isolation, with difficulties with daily living increased two-fold, ease of social functioning reduced by half, and religious participation reduced by half. Moreover, those with poor vision are admitted an average of three years earlier to nursing homes.
It also increases morbidity. The risk of falls is two times higher, the risk of depression three times higher, and risk of hip fractures four times higher. The risk of death is two times higher.
"Poor vision is much more common than we realise, it triples with each decade after the age of 40 so that almost half of people in the 90's have poor vision, less than 0.6 or 20/40, and one in eight are legally blind," he said.
There are typical reasons for patients not accessing services. Frequently, they don't believe they have a problem, or don't believe that services exist for them. Patients often feel they cannot make the trip to access services and when their ophthalmologist tells them that "nothing further can be done," they take this to mean that no services exist for low vision.
The solutions, however, are relatively simple. The over-50s should have their vision tested at least every five years, while all elderly should be tested for vision as part of aged care assessment. Appropriate referral pathways for those detected with poor vision need to be established and health authorities need to improve access to spectacles for the poor.
Professor Taylor told EuroTimes: "Most of the barriers to referral to low vision services relate to education and these are clearly problems in Western countries. In developing countries the low vision resources do not exist so it is also a question of availability."