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An update on the Eye-tem Bank project: a novel and comprehensive quality of life measurement system

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Session Details

Session Title: Special Cases II

Session Date/Time: Monday 07/09/2015 | 17:00-18:30

Paper Time: 17:00

Venue: Room 11

First Author: : K.Pesudovs AUSTRALIA

Co Author(s): :    J. Khadka   E. Fenwick   E. Lamoureux              

Abstract Details


The Eye-tem Bank project aims to develop and test technologically advanced and comprehensive quality of life (QoL) measuring instruments in the form of item banking implemented via a computer adaptive testing (CAT) system for all eye diseases suitable for all population worldwide.


Royal Adelaide Hospital, Adelaide: the Queen Elizabeth Hospital, Adelaide; the Royal Victorian Eye and Ear Hospital, Melbourne; Ashford Advanced Eye Clinic, Adelaide; Adelaide Eye and Retina Centre; Adelaide.


The first wave of the project targets 13 disease categories: age-related macular degeneration (AMD), glaucoma, diabetic retinopathy (DR), retinal detachment (RD) , other vitreo-retinal, cornea, refractive error, cataract, amblyopia & strabismus, lacrimal & ocular surface, inflammation other than uveitis, uveitis spectrum of diseases and neuro-ophthalmic. Each disease-specific module undergoes four phases of development: Phase I: Content identification (literature and patient consultation); Phase II: Pilot testing the initial item sets for item calibration using Rasch analysis; Phase III: Validation of the module implemented via a CAT system; and Phase IV: Evaluating QoL impact to develop disease-specific normative values.


A total of 468 patients with 10 different eye diseases participated in 52 disease-specific focus groups and 247 interviews. A detailed qualitative analysis of the data identified disease-specific items. When reconciled against the items identified in literature, a total of 3179 unique items have been identified across 10 disease-specific modules. The total number of items between modules ranges from 302 to 349. Phase I data collection for 3 remaining modules (cataract, refractive error and neuro-ophthalmic) is ongoing. Phase II of DR and glaucoma have been completed and both the pilot instruments demonstrated promising psychometric properties when analysed with Rasch analysis.


The pilot items of the Glaucoma and DR modules have been calibrated using Rasch analysis to setup computer algorithms for the CAT system. These disease-specific CAT-based systems will be implemented for further validation and reliability testing. All the other modules of the Eye-tem Bank project are following the same development steps. A web-based CAT system will provide high quality measurement of ophthalmic QoL worldwide.

Financial Interest:


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